The MSMDS Family Circle is a recurring online gathering created for families around the world affected by Multysistemic Smooth Muscle Dysfunction Syndrome (MSMDS). Its purpose is simple: to offer a warm, confidential, and understanding environment where parents, caregivers, and patients can connect, talk openly, and support each other.

Whether you need to share a concern, celebrate a milestone, ask a question, or simply listen, this is a place where every voice is welcome.

What You Will Find in These Meetings

• A sense of belonging and global connection.
• A respectful and confidential community space.
• A friendly, open-mic conversation led by families.
• Shared experiences from people who truly understand the MSMDS journey.

How to Join

To receive invitations to the meeting, sign up for the MSMDS Family Circle using the link below. By joining the list, you will receive:



• Reminders and access links for each Family Meeting.
• Schedule options adapted to different time zones.
• Occasional updates about community initiatives.

About the schedule

Families live across many time zones, so meeting times may rotate or have multiple editions when possible. All details are shared in advance through the mailing list.

upcoming meeting

Our next MSMDS Family Circle will take place on February 28th, in honor of Rare Disease Day. Registered families will automatically receive the Zoom link and meeting details.

This community exists for you, and because of you. Together, we make the MSMDS journey a little less lonely.