Board of Directors

ACTA2 Alliance is led by a group of individuals deeply committed to advancing research, supporting families, and strengthening the global response to MSMDS and ACTA2-related conditions.


Our Board of Directors brings together personal experience and professional expertise, guiding the organization’s strategy and ensuring its mission continues to move forward.

A community-driven organization


ACTA2 Alliance is built on the dedication of individuals who contribute their time, knowledge, and experience to support families and advance research.


We are always looking for people who want to contribute their skills, experience, and time to support the MSMDS and ACTA2 community.

Whether you are a professional, a researcher, or a family member, there are many ways to get involved.


Get involved with ACTA2 Alliance